Sat, 13 Jun 1998 18:58:47 -0500
From: "Montrel A. King"
To all of the SCD subscribers:
I am Jennifer King and I am a 3rd grade teacher in Missouri. I have
Irritible Bowel Syndrome and have been diagnosed for 7 years. I
found Elaine's diet by talking with a friend whose mother was on
the diet. I used to spend all day in the bathroom as many of you
have, but my job does not facilitate such an inconvenience. Every
time I ran to the bathroom, I basically risked a lawsuit leaving
my students alone!
1, 1998 will be my one year anniversary on the diet. I have followed
it faithfully and my life has changed for the better. I am a nice
jovial human being again!
I vowed that I would not do anything to change my diet during the
school year, but now that summer is here I have made a few changes
and I have not felt the same since. I added bread back into my diet
and at first it was great. It was sinfully great. But I have overdone
it a bit and I need to get back to the basics.
I am currently taking Elavil (anti-depressant to work as an
anti-spasmotic), Paxil (anxiety), and Prilosec (for gas.) Does anyone
out there take any of these medicines as well as follow the diet?
If so, I would like to hear from you. I am having trouble getting
motivated to go back to the diet in full force. It is hard once
you have splurged a bit. I am so proud of myself for being 100%
faithful for 10 months and if you have experienced what I am going
through, I would love to hear from you as well.
One more thing, I have been experiencing panic attacks for the past
year and a half and I have read about the bowel-brain connection.
I was wondering if anyone else could shed the light in this area.
Thanks so much,
Sat, 13 Jun 1998 23:49:25 -0600
Subject: ONE YEAR!
Well, we didn't write down the exact date or anything like that,
but Matt has been on the diet for a year this month. Things are
going really well. Even his respiratory problems, which started
at the same time as all his other symptoms, have finally all but
gone away. He has gained weight consistently during this year. He
had lost a considerable amount of weight prior to going on the SCD,
not a good thing for a twelve year old to be
doing. At thirteen he is active, gaining weight, and doing all the
things his friends do except that hanging out at McDonald's is pretty
out of the questions. Luckily, his friends don't do a lot of that
anyway. Thanks to everyone who has been of assistance.
Fri, 03 Jul 1998 08:11:17 -0500
From: Matthew Cirillo
Subject: Re: SCD diet
Yorktown Estates wrote:
>> I am curious about how long it was until you noticed significant
changes in symptoms, how long it was until you were able to get off
medication (if you were in it), and if you plan to stay on the diet
for the rest of your life. I also would like to know what foods, if
any, that were deemed acceptable for the diet, might have caused problems
for you. Did you ever consider surgery?
I started the diet 2 1/2 years ago. I have Colitis. I noticed changes
in 2 weeks, which were significant. My swelling went down, my urgency
to go went down. I still had some bleeding, which only fully went
away for a few 2-3 week periods at a time. MY spirits went way up.
It was quite a while after that before I "found myself" at a higer
level of remission, it is a slow, slow process. I feel that it took
"resigning myself" to being on the diet for psychophysiological changes
to occur to offset the frustration and discouragement of being chronically
ill. I stopped meds after about 6 months on the diet. I should be
on asacol, as a day-to-day maintenence drug which is
supposed to help you stay in remmision, but I think it increases my
bleeding. So I find that I just stop taking it.
I had achieved a level of remission in March of this year that led
me to believe that I had "gotten all I was going to get" from the
diet. All the mucus, swelling and accompanying urgency to move bowels
had disappeared. I had occasinal sporadic showings of blood in my
stool, but nothing like what I had experienced before going on the
diet. I had long given up any medication. A happy camper, I was. I
started "reintroducing foods." I figured corn (in the form of tortilla
chips and my own custom corn bread recipe) and rice, and beer were
good starting points. Much to my delight, I was able to handle them
without any adverse symptoms - at first. I noticed a significant boost
in energy, most likely from the carbohydrates, and put an extra maybe
7 pounds on, I felt more substantial. Once I started putting ketchup
on burger patties, and allowed myself to go out to restaurants, the
symptoms started creeping back until -- WHAM! I was having a relapse!
Now, 3 weeks later, on 15 mg of prednisone and back on the diet "with
fanatical adherance" I find that I'm coming around again. I think
if I had tread more lightly, or waited another 6 months, I would have
been less succeptiple to having this relapse. BUT - I've learned now
that the diet definitely alleviates the most bothersome symptom for
me, the constant urge to go. I'm doing rather
well, I must say. I feel good. But, some of that new-found carbo-induced
energy is gone (replaced by the racey steroid induced frenzical state
that prednisone puts me in). I expect that I'll be able to taper off
the prednisne in another couple
of weeks, thanks to eating only foods legal to the diet. I'm also
back to being sensitive to stuff like grape skins, which are irritating
to my stomach, but I don't feel that I'm back to square one by a longshot.
If you ar pondering whether or not to take the plunge and do the diet,
you would be foolish not to give it a
shot. It must be done with 100% commitment, from my experience. Treat
it like a religion, and you are the high priest.
Wed, 8 Jul 1998 03:48:08 -0500
Subject: RE: SCD Questions
I have been on SCD for almost two years: (1) Acid reflux gone almost
immediately. (2) Constipation and D gone after 8 - 9 weeks. (3)
I have learned to listen closely to my body. Lately I have been
cheating on the diet to see what would happen. So far, I can sense
when the food is not agreeing with me (pizza) (chips)etc., and I
immediately go back to the diet. It has been a year with no symptoms.
But my body seems to say it is not ready yet. If it means that I
will have to eat grilled salmon seasoned with Cajun spices, meatloaf
made with a combo of turkey, pork and beef (lightened with V8),
delicious nut muffins and smoothies for breakfast, pies made with
almond flour crust, lasagna made with zucchini - I think I can enjoy
it. In fact it seems like a very healthy life choice to me.
Date: Mon, 13 Jul 1998 22:22:08 +0200
Subject: Doctor update
I went to my doctor today and he released me. He said I didn't need
to come back unless I had a problem. He said I really hadn't had a
real flare-up for over a year. I told him that is because I have been
on this diet for that long. He still does not think that the diet
is what has made me feel better. I am by no means completely cured.
There are some days that my side hurts, but it is not bad and does
not last. I was so glad to released from the doctor after 4 years.
I am not on any
medication, but plan on staying on scd for the rest of my life. I
had to share this news with those people who understand how exciting
Date: Mon, 27 Jul 1998 09:34:28 -0700
From: "Linda Schaaf"
Subject: Is this the right diet for me?
I had the same problem you do. I was usually constipated and sometimes
felt as if I had a basketball in my gut, I was that bloated! Off and
on this would reverse to D, which many times I welcomed as it gave
me relief. Just before going on the SCD, Sept. 27, 1997, I also began
bleeding. Another problem was extreme chest pain along with sharp
pains around my heart,
which fortunately ended up to be from my stomach, not my heart. My
theory on that was that all the stuff sitting in my intestines, due
to constipation, was causing gas to back up into my stomach.
The SCD has helped me become 'regular', which equates to one good
bm in the morning. I leave the house for work feeling light and good.
I very rarely experience the chest pain or sharp stomach pains now.
I still have to work at it though, because there are certain foods
that are allowed on the SCD that give me an adverse reaction. If I
have a bad day, I can usually track it back to a particular food,
usually some type of fruit.
I have also cheated on occasion and I can declare without a doubt
that grains will bring back the constipation immediately and can last
for 4-5 days. So breads, pasta, anything with flour in it is harmful.
My doctor wanted me to also try a diet that would be right for my
blood type. I have not completely implemented it because combined
with the SCD, it restricts me even further. One thing that the blood
type diet would allow is corn, which the SCD does not. So my doctor
said to experiment, one food at a time if I want. Well, I tried corn
(I love chips and salsa). I do not recall having an immediate gut
reaction, i.e. constipation, but it
did bring back my eczema, which some research has shown, the scaly
condition of the skin is an outward sign of what is occurring in the
I can summarize all of this by saying, I have tried the SCD, and I
have tested it with somewhat controlled experiments, and my conclusion
is, it works! And it doesn't pay to cheat. When I started the SCD
I hoped it would be a temporary thing, maybe 2 or 3 years. But I have
adopted the attitude that the SCD is the way for me to eat. Since
it has made such a difference in my life, I don't look at it as temporary
anymore, and I also
don't see it as restrictive.
I have read that when you continue to eat foods that you are allergic
to you will gain weight. I had gained an unwanted 25 lbs. I would
also notice, when I was experiencing bloating, I could gain 5 lbs
in one day! I have lost that 25 lbs and am back to my ideal body weight.
The daily weight fluctuations have diminished as well.
Sorry for making this so long. I hope you try the SCD, and I hope
you get the same relief that I have. You will want to be fanatic about
it, especially for the first 4 weeks, to see if it is going to help
Date: Wed, 29 Jul 1998 21:20:57 -0700 (PDT)
From: Lisa Quigley
Subject: Hello from Northern B.C.
I was diagnosed in April with Celiac. During my first month my Naturopath
and I added pancreatic enzymes, plantzymes, Bile, HCL and Pepsin,
Carbamide. I am already taking biotin and folic acid, calcium, magnesium
etc. etc. Within the first month of gluten free and my new supplements,
I felt alot better.
Prior to being diagnosed I lost 20 pounds in 3 months. I now weigh
98 pounds and am 5'7". A little bit slim for my liking! As well, prior
to April 5th, I was a vegetarian for 2 years as I thought that I was
doing my body a favour cutting out the meat. I had problems digesting
it but now as I think back it was probably what I ate with it that
was causing the problem. For my entire life, I have been affected
by digestive and constipation problems and just sort of learned to
live with it as "this is me". My energy levels in March 1998 were
so low that I was sleeping most of the day and had incredible headaches
and stomach aches (especially after eating - in the gallbladder area).
I am now a meat & veggie eating-aholic! and have never felt better!
On May 25th I dug out my copy of "Food and Gut Reaction" by Elaine
Gottschall that I had purchased about 5 years ago, read, put away
and thought that I could never eat like that. As of that date I have
been on the SCD. It was about a month after that and I really started
to notice the increase in energy. Like wow! Up to May 25th I was feeling
OK but new there was still something wrong. I like a few others (notes
that I have read on the chat line) dove right in and was eating nuts
etc and salads from day one as I didn't really read the instructions
properly. Something else that I notices as I reread the book a few
days ago was that seeds are not allowed. I've been eating tahini and
sunflower seeds quite a bit. No more now though. I have a few questions
that I was hoping for input if possible.
I still am constipated. I went to see a different ND who told me that
at one time in my life, I have had the Epstein Barr Virus (I cann't
seem to remember having it) and that the symptoms will be low grade
for the rest of my life. He said that this causes improper liver function,
therefore poor elimination as well. I was unable to take the homeopathic
tincture (barberry) as it made my feel fatigue and have a horrible
headache. Have you heard of this and do you think that it could cause
I still also have an "Oily substance" that I see in the toilet water,
when I go to the bathroom. What does this mean. Could it be from the
seeds that I have been eating?? Not digesting the fat??
I have not gained any weight back yet and cannot wait to put it back
on. I read some of the info about certain veggies (squash, pumpkin,
turnip) that may do it and I will increase this in my diet asap. Any
other recommendations? Would eating smaller meals 4 x a day be good?
I was taking a colloidal mineral drink prior to being diagnosed called
"Longlife Minerals". It has all 90 colloidal minerals and a few other
added nutrients such as nopal cactus, 100% soluable fibre. It is in
a base of crystalline fructose, potassium gluconate, magnesium gluconate,
citric acid, malic acid, calcium gluconate, zinc gluconate, potassium
potassium sorbate, copper gluconate etc. etc. I think the colloids
are good but the base is not allowed on the SCD. Therefore, can you
recommend a product that would give me the collodial minerals. Do
you think they are a good thing???
Is gray hair (I am 29) caused by my body being starved of nutrients?
Will it turn brown again?
What can you do for a prolapsed bowel??
I also have another bit of information that I would like to share.
I have just recently read "Eat Right for your Blood Type", by Peter
D'Adamo. It is really an interesting book. One thing that fascinated
my was that I am a Type "O" and the diet that he outlines for Type
"O"'s is very close to the SCD. I am interested to know how many people
there are out there that have Celiac etc. are Type "O" people????
The Type "O" is known as the "Meat Eater - Hunter Gatherer" and was
the first known blood type for prehistoric man. There is a web site
about the "Paleolithic Diet" if anyone is interested. On this diet
the individual eats only what the Hunter Gatherer would have ate back
then - meat, veggies, certain legumes, certain nuts, no dairy, no
grains and no potatoes. The Type "A" came along later when mankind
began growing food for agricultural purposes. They Type "A" is the
vegetarian and can tolerate the grains and dairy but isn't very tolerable
red meat etc. I apologize for dragging on so long, but I thought is
was interesting and
Food for Thought!!!! Hee Hee
I feel really good, the best in years (have been losing weight for
about 4 years now). I would like to sincerely thank Elaine Gottschall
for writing both of her books and giving me a new life. I also enjoyed
the new information about Celiac in "Breaking the Viscous Cycle".
I can actually think straight again and have colour in my face! We
have been trying for
children for a few years now and can now hopefully see them in the
future sometime. I look forward to helping anyone I can with this
I look forward to any of your knowledge when you have a moment!!!
Thank you again!
Fort St. John, British Columbia
Date: Thu, 3 Sep 1998 04:31:20 -0400
From: "Steven A. Melnick"
Subject: Re: Smoking
I have been on the diet for 2 years with tremendous (perhaps miraculous!)
results. I do occassionally enjoy a cigar (every few days) and have
done so for years. It was not until I went on this diet that remission
occurred. In fact, I was on a serious downward spiral until I started
The diet works. Stick with it.
Fri, 11 Sep 1998 08:40:41 -0400
From: Rachel Turet
Subject: a UC moment
>Luckily, she let me take a shower, wash my clothes and borrow some
of her clothes. It was a nightmare. I cried at the time - but now
I think its funny.
I so admire your being able to look back at your incident and smile.
I wish I could recall even one of mine without shuddering. Its been
3 & 1/2 years since I began remission on this diet. Your story brought
back to mind my blackest moment, definately not an Oprah story.
About 10 years
ago, freinds bought tickets for our anneversary to see Elton John
at madison square garden. I had to meet them & my husband at penn
station, so I left work, going to the bathroom first of course.
I walked the 2 blocks to the train station and as I walked up the
stairs, IT hit me. I had to go SO bad. As the train approached,
I seriously considered throwing myself in front of it to finally
put an end to my miserable
existance. I can actually feel myself standing there swooning, with
the train whistle screaming its approach. I always carried underwear
with me. I got on the train crying, and went into the 2 foot smelly
bathroom. The floor was filthy and sticky with G-d knows what. I
had to remove my shoes, trying to do one at a time, to take off
my pants. It was just blood and mucous I'd released, but even so,
it was so disgusting. By the time I met
them, all I could think about was going home. It was the most miserable
night of my life. I couldn't shake the horror of what I'd almost
done. I kept saying nothing was wrong, until the train ride home
when I burst into tears and told my husband what had happened, leaving
out the suicide thoughts. In fact, I only told him of that recently.
I'm grateful every day for Elaine, the diet and the wonderful life
I almost threw away.
Date: Wed, 11 Nov 1998 20:44:00 -0600 (CST)
From: Paul Fleming <email@example.com>
Subject: Re: Ryan's Story
I know this will be long, but I feel Ryan and I should tell his
story now that he has made the 1 year mark.
My son, Ryan, was diagnosed Jan. 1st, 1996 with Crohn's. He was
in 8th grade at the time. His pediatrician had no idea of what his
problem was, and told us to take Ryan to a GI specialist.
The GI had Ryan undergo a CAT scan and upper GI. By the results
of these two tests he was able to determine Ryan had Crohn's. We
had never heard of this disease. He suggested prednisone for starters.
By Feb. he was much worse. The GI suggested resectioning surgery.
A colonoscopy detected that surgery could kill him, because the
lining of his intestines was all but gone.
The doctors had no answers, they suggested we take Ryan to the Mayo
Clinic in Rochester, MN. While there Ryan was given extensive drug
therapy. We took him home 3 weeks later, with 6 different prescriptions.
Ryan did well on the drugs. As summer came he was doing very well.
He was tapering off the drugs. As fall approached, Ryan began to
flare. He was again put back on all the drugs. By Feb. of 1997 Ryan
was back at the Mayo again. This time a resectioning was done; however,
3 weeks later Ryan was in pain, the symptoms were returning. The
doctors at the Mayo did another colonoscopy and discovered the colon
was now infected. By Oct. 1997, the doctors were advising more surgery.
It was at this point that a doctor in the ER told us of his brother.
He said his brother had Crohn's and after 5 years started a diet
that helped him more than drugs. He gave us the name of Elaine's
book and said, "you didn't hear this from me."
It took a lot of phone calls and searching but finally found a local
bookstore that could order the book for us. November 9, 1997 Ryan
began the diet, within 4 days he started to feel relief. By the
end of the first week, Ryan no longer had the bloody stools, the
cramps, or the D. By the second week, Ryan was getting more energenic.
He did experience the 2nd month flare, but it only lasted for 4
days. While on the diet, we started tapering Ryan's drugs. Ryan
has now been drug free for 7 months. He does take vitamins, magnesium,
potassium, and calcium. Most of these were suggested by members
of the list, over the last year.
Ryan and I have learned so much by reading through everyone's postings.
Every time we had a question for the list, BINGO, someone else asked
before we could. So, we just sat back and waited to read the posts.
During August, we called Elaine to tell her of Ryan's success.
She asked us to help spread the word. Well, we had already done
that. We've told several people in our area. We even spoke to the
Crohn's Support group in our area. I offer to help others get started
if they want to commit to the diet. Our next plan is to buy enough
copies of the book, to have them put in all branches of our public
Marilyn (Ryan's mother)
Mon, 19 Jan 1998 17:45:35 -0800
Subject: SCD -- Is it enough?
I am one of
the people who have had such success on the SCD that I am now so
busy enjoying a regular life, I have wandered away from participating
in the list as much as I used to. One of the pitfalls of getting
healthier! I have been on the diet since March 97, going on eleven
months now. I am someone whom the diet has helped very much. I know
there has been a lot of discussion on the list about whether the
diet is enough.
My opinion is
that for those whom it works for, it works very well. If it doesn't,
then it may not be worthwhile for you to be on the diet. Elaine
recommends a month on the diet to see if it helps. If it doesn't
perhaps you need something else, or a personal variation (which
could no longer truly be called the SCD, by the way).
I myself had
to eliminate many so-called "okay" foods for a long time.
I even gave up honey, all dairy and all fruit except apples for
several months. Now I can eat everything. I even had some "cheats"
over the holidays, namely some chocolate and white sugar, and didn't
have a single symptom from my transgressions, which is really amazing
to me. I never dreamed I would have such good bowel health again
in my life. By the way, my condition has been IBD.
I've been in
remission since last August. I have gone through many many patterns
of up and down during this past year, with relapses and bouts of
flu-like symptoms. But from my experience, I want to encourage everyone
to stay optomistic and keep trying. Don't give up and don't ever
cheat until you have at least been symptom free for a long time
(of course, Elaine recommends staying on the diet for a year after
you last symptom) and know you could handle it emotionally if you
backslide into a relapse..
Do what you
need to do for yourself if you need to take supplements, vitamins
or the drugs that help you, we are all highly individual. However,
it is my belief that the SCD really does rehabillitate bowel health
over the long term, even without additional measures. It may take
a long time. But the basic premise is sound. I know this from having
tried many angles of alternative health care and traditional western
medicine over many years of debilitation. I think I will remain
on an SCD pattern of eating for the rest of my life, because it
actually is rather habit forming after being on it so long. And
also because my Mom has had Crohns and I think my gut is my "weak
link." I will undoubtedly always have to be careful. I can
still tell how stress affects my gut, although I haven't had a relapse
in many months.
I also think
it is important to really read the book -- and to re-read the book
at some point, because there are things you will understand after
being on the diet for awhile that might have not made as much sense
in the beginning. There is a lot of science to understand. I wish
everybody a great deal of luck to top it all off!
SCD is it enough?
> How long were you symptom free before
you could start eating >everything?
First let me
be clear that what I mean by being able to "eat everything"
is everything that is on the SCD diet. I have not experimented with
grains at all, or anything else for that matter, short of the cheats
I had over the holidays that did not affect me adversely. But to
answer your question, four months. In August I was still not able
to eat some things. I might also add that I took medicine to erradicate
an amoeba at that time (in August) and that made a big difference
for me, helped along the SCD for me in a big way. I think it just
shows how unique all our situations are.
Tue, 20 Jan 1998 15:25:10 -0800
From: Prateeksha Bogardus
Subject: Re: SCD -- Is it enough?
Thanks so much
for your update on your health. I am so happy for you.
I also have
good news. I have been on the SCD since June 15, 1997. I have experienced
some improvement and a lot of flares, particularly diarrhea. In
December, someone posted how they handle flares: back to the original
diet and after things settle, adding only 1 new food at a time,
allowing 2 days to see what that new food does to the guts. For
about 6 weeks now, I have been just on the "starting"
diet. At first, no difference; then, slowly, slowly I began to notice
a change in my bowel movement from watery diarrhea to less of that
and more of a formed stool. This past week, it has been only the
I think I was
eating things on the diet that I simply was not ready for, i.e.
honey, (I still eat it in the cheesecake), fruit and yogurt! While
I haven't cut out the yogurt, I have reduced intake considerably;
only about 3 cups a week. No cheese, except the dry curd cottage
cheese which I put in the cheesecake and mix into the yogurt when
I eat yogurt. Rest of the time, I'm eating veggies (green beans,
all squashes, occasionally-- cooked skinless tomatoes,carrots and
zucchini) and chicken and fish and seafood. I try to alternate them,
eating a particular veggie/other food every four days. That's it.
can feel a shift happening in my guts. They feel "stronger";
like I haven't experienced in about 10 years! I have Irritable Bowel
Syndrome or Ulceritive Colitis, depending upon which doctor you
I plan to stay
on this diet for at least another 6 weeks, total of 3 months and
see what happens; if everything is okay, then slowly, slowly take
on a few of the other foods on the diet, one at a time and continuing
to follow the program above.
Hope this is
helpful to someone on the list.
to us all in 1998!
Wed, 30 Dec 1998 19:36:02 -0700
From: "Mike Simons" <firstname.lastname@example.org>
Subject: 2 Successful Years on the SCD
Tomorrow marks the completion of my 2nd year on the SCD, and all
is well. Many thanks to all of you for your support and guidance,
and to Elaine for her groundbreaking work. Slowly but surely the
"rest of the world" will realize that one can take significant
steps on one's own to cure oneself.
For those of you who have contributed to or wish to see my little
diatribe, it's here:
Happy New Year to all of you!
Mon, 14 Dec 1998 19:02:09, -0500
Subject: Elaine's Address
Elaine said on the web site in a fax that she has 200 or so letters
saying how the diet helped them. Wouldn't it be nice if for Christmas/Holidays
she got a card from each person on here? That would be 200 more.
Her address is:
396 Grills Road, R.R. #2, Baltimore, Ontario, Canada K0K 1C0
(UC and Lyme Disease)
Sun, 14 Jun 1998 08:46:08 -0400
Subject: Re: Added Bread Back into diet
I have been on the diet faithfully since 12/24/96 and I never felt
better, I have Crohn's by the way. I was diagnosed with Crohn's
7 years ago. I have started cheating I am not going to lie around
5 months now. I still feel the same great! My stool hasn't changed,
my stomach doesn't hurt and no blood at all. The food that I am
cheating with is bread. My weight on
12/24/96 was 125lb my weight now is 189lb WOW! Prior to my first
Crohn's attack I did weigh 186lb (this is my normal weight). Well
if anything changes for me I will keep you posted but, so far so
Mon, 31 Aug 1998 19:52:11 -0400
From: "Jim Prousalis"
Subject: Re: Update
I have been on this wonderful diet since 12/24/96
I was at my worst, I was diagnosed with Crohn's 7 years ago. Never
had surgery and was told that I should have due to my blood count
and to my massive weight loss. I was on med's like prednisone, asacol,
etc. up until 3/97 I was told that I would need to stay on asacol
or 6mp for the rest of my life. I guess I had to prove them wrong.
Off all med's eating bread and potatoes, so far so good.
Good luck to all and GOD bless Diane.
Thu, 24 Dec 1998 09:29:37 -0500
From: "Jim" <email@example.com>
Subject: 2 YEARS ON DIET
Today I have
been on this wonderful diet for 2 years!
I have had Crohn's for over 8 years now and the last 2 years of
having Crohn's have been great! I thank GOD for Elaine and my doctor
for introducing me to the diet. When I started the diet I was at
my worst. I weighed 125lb and I am 5'11". My normal weight
prior to having Crohn's was 180lb. When I was diagnosed with Crohn's
I went down to 150lb and I could not gain a pound for the life of
me. Every day I had pain in my gut and every day I had to worry
when I was leaving my house where the next bathroom was located.
Once I started the diet I noticed a great improvement. I was gaining
approximately a pound a day for the first 34 days. My energy level
went through the roof. Well 2 years ago on this day I started the
diet and to this day that was the best Christmas present I can ever
God bless you all and Happy Holidays.
P.S. There is something on the News at 5:00pm tonight regarding
a break through on Crohn's Disease. If anyone lives in the NY area
figured it might help.
Tue, 7 Jul 1998 10:15:57 -0700
Subject: Flare after 2 & 1/2 years
I've been on the SCD for 2 &1/2 years and I'm experiencing a bad
Crohn's flare. Several things brought it on. First I had my teeth
cleaned - that has always given me some trouble, maybe swallowing
the plaque that is scraped off sets off my immune system. Second
during the few days after the teeth cleaning, I ate some fresh cherries
- only about five or so, but even after 2 yrs. on SCD I still can't
eat fruit. Then a few days later while still not feeling so great
I ate dinner at a friends house. It was a BBQ, so there probably
was a little sugar in the BBQ sauce, plus I ate about 1 Tbs. of
baked beans -also probably had sugar in it. These are very small
amounts especially for someone on the diet for over 2 years. Well
I'm now in 40mg prednesone a day for the last 5 days. It has helped,
but now I want to taper off as fast as possible. I'm wondering what
some of you have experienced as far as tapering down and how quickly
you have done it. of course I'm being very strict with diet - only
cooked meat and vegetables - not fruit or dairy or honey.
Wed, 26 Aug 1998 09:47:28 EDT
Subject: Re: Off to college
My daughter Chanelle is off to college this Saturday. It is a miracle
when you consider that last Oct. she was in the hospital receiving
three blood transfusions along with massive doses of antibiotics
and cortisone. It was touch and go for a week if she would need
emergency surgery for toxic mega
colon. She started the SCD diet in Dec. and has followed it with
fannatical adherance ever since.She has been good about it, never
once complaining "why me?" She did suffer two bad flare ups at the
three and six month marks. Both of these flare up occured when she
got down to low doses of rednisone(once at 7 mg and once at 0) Each
time she needed to go baack to 40mg. to put the fire out.We have
never had the courage to try to get through a flare up without drugs
because of how fast and hard it hit her the first time. Anyway she
has been on 8 mg. all summer and holding while we slowly switched
her from Asacol
to Sulfasaline (because of the lactose filler in Asacol). She looks
great (no gross side effects of prednisone) feels great, and is
so joyfilled about going to college.
I have been
cooking for weeks and freezing so I can send her
whatever she needs to supplement the food plan. She will have a
small ref.-freezer right in her room and a full kitchen on her floor
sh e can use. The food director is a doll and said he will do anything
he can to help her. If there is a will there is a way. We are determined
not to let UC run her life and make her decisions for her. She was
an honor student in HIgh School
and played varsity lacrose dispite her UC. We are so grateful to
Elaine and the SCD and to all of you for not having to feel alone
and for all the great info. you all share with us.
Wed, 23 Dec 1998 10:48:08 -0400
From: Nancy Emerson <firstname.lastname@example.org>
Subject: Re: Need help to get started on the carbohydrate diet.
Wow, your story sounds so much like mine. I just subscribed to the
list yesterday, and posted some general background, but it sounds
like you're also new so you may not have read it.
version: I was diagnosed at 17 with Crohn's Disease. I've had one
resection (6.5 years ago). I'm now 27 and teaching high school math.
A few weeks ago it would have been more accurate to say I was trying
to teach high school math, as I had no energy and was in very frequent
pain/discomfort which I just couldn't stand anymore. I know where
every public restroom is in many areas of NH, and I know the walls
of my bathroom at home more intimately than any other room! I was,
even more, just trying to survive.
I knew the diet
would help, as I had started it most of the way (some cheating)
over the summer and it helped significantly. I couldn't/didn't maintain
it completely once school started, and I had gotten to the point
3 weeks ago where I was almost as sick as I had been last June.
at square one, and after 3 weeks I feel GREAT!! This is the third
day in a row I've had no discomfort to speak of. The trips to the
bathroom have decreased from at least 6-10 a day to between 2-4,
frequently (though not yet always) formed. These things really excite
me these days. It feels SO good.
I had certain things I just couldn't resist, and I didn't improve
nearly as quickly as I have this time. Following the diet strictly
is definitely important. It helps even when you cheat, but it won't
have the chance to fully work it's magic.
AND, once you
start to feel better, it starts to be easier to maintain. Now when
I look at even my favorite forbidden foods, I connect them with
how sick I was not long ago. It was awful, and I NEVER want to be
back there. The more I associate certain foods with that pain, the
less appealing they seem. It helps a lot.
So yes, the
The last thing
is, I too had the idea that I would be sacrificing/investing a couple
of years of difficultly in order to be "over it" after
that and never have to worry about it again. One thing that has
helped in the last 3 weeks, as compared to my summer attempt, is
that I realize that the diet itself is no sacrifice at all compared
to the sacrifice of not being able to live any kind of enjoyable
life when I was so sick. It starts to seem like a gift. Yes, I would
like to eat garlic bread again in a few years, but if I don't it's
still okay. I wasn't convinced of that until recently, but now I
need no more convincing.
Good luck and
keep us posted!!
Wed, 9 Sep 1998 20:59:40, -0500
Subject: Our Story
We thought we should give our story since we know about lots of
Ten years ago, we were active professionals. First Shannon mysteriously
got sick followed a few months later by Dave. He was eventually
diagnosed as UC. Shannon was never diagnosed - the symptoms were
too mysterious (nauseous, weak, nervous, parasites). Believe me,
not knowing is worse than knowing. And for both of us to be sick
at the same time with similar symptoms was very strange. Dave had
diarhhea and Shannon didn't usually. Dave has seen 15 doctors in
4 states with no relief. Several batches of flagyl for parasites,
followed by another parasite drug, the symptoms persisted. They
put Dave on prednisone and sulfasalazine but it just made him worse.
Doctors didn't help Shannon so she stopped going and tried natural
This summer, we realized what it was: Lyme Disease we had gotten
12 years ago on a trip to New England. We read all of our symptoms
on lymenet.org. We both went to the doctor because we didn't feel
well shortly after the vacation and Shannon had the classic arthritis
for several months. We had Dave tested (he has medical coverage)
and it was positive. The only treatment for the late disseminated
disease (meaning you've had it forever and it's fully entrenched)
is months of I.V.
antibiotics. Shannon's always been allergic to them. We've been
searching for another answer.
Dave's current doctor, a naturopath, put him on the blood type diet
and Shannon joined him. It was a terrible experience where we both
lost lots of weight we couldn't afford to lose but it led us to
the web site where someone recommended the scd book. We discovered
by elimination that grains were hurting us, one by one taking them
away until we were almost on the scd diet anyway. Being on two separate
diets was terrible
(Dave's an O and Shannon's an A) With Dave's UC, we knew he should
try the scd. Shannon went along because of the problem she was having
with grains. The diet also kills bacteria, etc., so we knew it should
work for Lyme Disease.
Only three weeks later, we're both feeling somewhat better. We can
see the rainbow on the other side. Over the course of this illness,
we've lost everything. Neither of us can work. Dave is on disability.
His symptoms were specific enough that he could be approved. We've
gone bankrupt. Both of Shannon's parents died and she wasn't well
enough to go to see them or their funerals (Shannon's family sees
her as heartless
This diet is truly a Godsend. Sorry we got so longwinded.
Dave and Shannon
Thu, 24 Sep 1998 13:46:04 -0500
Subject: Ken is back--spread the SCD word!
Last summer my husband, Ken (29 years old) was diagnosed with Crohn's
Disease. He was 6'5", 210 lbs, and went down to 165 pounds in a
VERY short time. Really, I thought we would lose him; we had no
idea what was wrong and it seems our doctors didn't either. He was
so sick that he had to go on disability for three months.
During that time he learned about Breaking the Vicious Cycle. A
man at work had a relative's young son who was "cured" by this diet.
He was impressed with the fact that this woman was on television
with Dini Petty! (I presume he meant Elaine.) He gave me the phone
number and from there I went to the library and devoured the book.
It made sense. Ken read it and agreed. He went on the diet and began
to feel GREAT! He did not need to introduce new foods slowly, it
was almost an instant remission. He gained back all his weight.
Anyway because he felt so good, he decided he could go back to his
old way of eating. I told the SCD list that I would lurk until Ken
decided to return to the diet. I had to see him get crampy (D) and
sick again, although not to the same extreme. We both knew that
if he kept up eating this way, he could very well end up with colon
cancer. So, a month ago, Ken went back on the diet. And once again,
he is feeling great, as though he is not plagued with the disease
Being clergy in a stressful ministry, it is important that my husband
remain healthy and strong. We are the Senior Chaplain Couple at
a Rescue Mission, working with street men and women, and running
a substance abuse recovery program for men. These are the outcasts
of society and very hard to the core.
Working at a Rescue Mission means dodging all types of traditional
goodies on a daily basis: donuts, brownies, cakes, pies, breads
of all kinds. Ken ate these every day! I'm surprised his relapse
wasn't faster. It was actually so slow and gradual we barely noticed
he was getting sick again.
When I had told the SCD list what was happening, I recieved wonderful
support from Rachel, Dan, and Val. You said that it would have to
be his decision, but in the end he would have to come back to the
diet as his remission would fail going back to a standard American
diet. I am so appreciative of all of you on the list. I am grateful
that Ken made the decision to go back on the diet, completely free
from my nagging or hinting. Most of all I must give the thanks to
PS. I hope this wasn't too long for you all. There is actually a
moral to this story. Spread the word of this fantastic diet to everyone
you know. Don't be ashamed and don't be shy. Word of mouth is a
wonderful tool and if it were not for a man who knew very little
about it except that it had helped a distant relative... where would
my husband be today? Perhaps with the Lord. Who knows.
PS. Rachel, is it possible to forward this letter to Elaine? I think
she would be encouraged by it. Does she have email? Let me know
Date: Tue, 15 Dec 1998 13:59:51 -0000
From: "Neil Heyes" <email@example.com>
I had to share this with the group:
I have been on the diet for 3 months, and most of my symptoms have
disappeared already, and yesterday I had a colonoscopy and they
found no inflamation in the gut and no ulceration.
I am so pleased, I had been on steroids for nearly 9 years in September,
and now I am on no medication. This diet has really changed my life!
Mon, 17 Aug 1998 09:48:24 -0400
Subject: Re: chat site
This diet has been the answer to our prayers of the last three-and-a-half
years. My son was diagnosed with ulcerative colitis at 11. We tried
alternative therapies ranging from acupuncture to hypnosis, as well
as prednisone, Asacol, sulfasalazine and cortisone enemas. Nothing
made much difference. Now, I can happily report that at fourteen,
he is doing much much better, after only three months on the Specific
Carbohydrate Diet. He has improved tremendously, and his response
was startlingly obvious within only two days of starting the elimination
of certain (most) carbohydrates. The book to get is Breaking the
Vicious Cycle, by Elaine Gottschall, and it will answer all your
specific questions. If you don't have it yet, be sure to order it
from Barnes and Noble. It is a dream come true for us.
My heart goes out to you and your family. You need not watch your
son suffer like this, despite what the doctors say: there is help
available. And is not difficult to integrate into your lifestyle,
so you can now begin to relax into accepting that you have just
stumbled across a miracle.
Mon, 3 Aug 1998 21:12:31 -0400
Subject: The FUN Factor
When my son was going to the bathroom twelve to fourteen times a
day, he never had to break from the roller hockey ring during a
game or practice. I always figured it was the sheer exhilaration
he was experiencing when he played. And it never failed to bring
me to a state of tearful joy to watch him in the rink, zooming around
at top speed. For a while, I hoped we could move beyond this illness
by focusing on the emotional realm. We tried to do it through hypnosis,
acupuncture, biofeedback, three and a half years of homeopathy....not
much happened. If we could've kept him surrounded by friends, on
roller blades...twenty four hours a day...perhaps, but that wasn't
all together feasible.
We are so grateful for Elaine's dedication and SCD. It has turned
Daniel's life around. Right now, he is out for a bike ride on a
summer evening...away from the bathroom, just being a teenager.
Life is good.
Tue, 3 Feb 1998 23:33:04 EST
Subject: Re: Drugs & Diet
I have some
of the same questions that you do regarding the SCD diet. I came
out of eight years of Crohn's remission in september and went on
the SCD diet and Pentasa in october. My daily bouts of loose stools
and D. stopped almost immediately. I am staying strictly on the
diet, but am not limiting the quantities of any permitted foods,
ie. as much fruit, honey, yoghurt, nuts, meat, vegetables etc. as
I can eat. I seem to tolerate everything. The pains from inflammation
have subsided substantially, but are still present occasionally.
I was very anemic, but have been very aggressive with iron, b-12,
folic acid, and a host of vitamins. My blood levels improved quite
a bit in two months but still have a way to go. I have a stricture
that is too small to allow a scope through and finally, may be developing
my first fistula. I really hope that isn't the case.
on all this is that I will give nutrition (SCD) and modern medicine
100% each a chance to get me to the best overall health I can have.
Stopping eight years of D. is surely an improvement and I contribute
that exclusively to SCD. According to Elaine Gottschall that should
also improve blood levels. I expect it is the Pentasa that has helped
reduce the pain of inflammation this quickly. But it may not be
enough. We'll see. I've always been a firm believer in modern medicine.
But I chose to go on the SCD diet because it makes so much sense.
We are all learning as we go. I think the restrictions of the diet
is a small price to pay for the chance it may bring renewed health.