Re: success stories and testimonials
Date: Wed, 15 Mar 2000
>>Hey y'all, I'm compiling a current list of success stories
and testimonials to the SCD for the scdiet.org site. If you have
something to say "for the record", now is the time to say it :-)
We're looking for stories from anyone on the diet- from one month
to one decade.
Thanks in advance, Mike Simons>>
My wife has had Crohn's Disease since 1973. Since that time she
has endured treatments of Azulfidine (bad side effects due to headache
and light sensitivity), one night in the hospital where they did
little more than watch her, and several rounds of prednisone (which
help for a while). Then there were numerous days in bed with the
heating pad and many days of fasting during days of bad pain. Hot
baths sometimes helped a little.
A friend from
Canada suggested that she try the SCD diet. After reading the positive
reviews in Amazon.com for "Breaking the Vicious Cycle" we decided
to try it in August, 1999.
We didn't know
what to expect. Within 24 hours the gas and pains were reduced significantly.
This was the first really encouraging news in 26 years since it
offered the possibility of long-term help. The "D" started to decrease
significantly in a period of days.
Now we are at
the six-month mark. The results have been very encouraging. She
rarely spends days in bed, although there is still some pain.
There has also
been a side benefit. I have not read too much of a link between
Crohn's pain and headache, but she often has the two together, or
one after the other. Since being on the SCD she has almost been
without headaches at all.
We are both
Christians who love the Lord Jesus, and are thankful to God, to
Elaine, and others who have fought to get out the news about SCD.
We certainly didn't hear about it from the Crohn's and Colitis Foundation
or any of the Doctors we have consulted! Wouldn't it be great if
someone spent some real money to research this and refine it?
It takes some
work to prepare the food, pack it up to bring to church dinners
or to visit friends, but it has been more than worth it since it
has saved so much time and pain from being sick.
We have been
glad to pass the SCD on to others. One family had a teenaged son
who had been having a rough time. His mom said that the diet had
definitely been helping him and was starting to get encouraged.
But the Doctors also had him on methotrexate. One day last December
bacteria from his gut got into his blood stream, and he died the
next day. His family said that they had not been informed that the
drug he was on lowered his immune system or they would not have
consented to it. Needless to say they were upset about the whole
thing. They had only wished that they had found out about the SCD
& Mary Waters
Beginning SCD experiences with colitis
Date: Sun, 19 Mar 2000
From: Callahan email@example.com
You wanted to hear experiences starting the scd and colitis. Well,
I have u colitis and started SCD two years ago. I was in the midst
of a nasty flare coming off 6mp when I started scd (I'd been in
remission for four years with 6mp, but wanted off drugs).
This is how
the beginning of scd had gone for me. Others with colitis have had
similar experiences. Most of us needed more time than the book mentions.
At least two months, then once all is okay many of us wound up with
the "three month flare" for me that got under control in a couple
of weeks. Hang in there. Like you, I also knew I was on the right
track. I wasn't getting worse and I was starting to slowly feel
The D stopped
a short while after starting the diet. I drank at least eight large
glasses of water a day, every day! I didn't drink any juice,tea
coffee. Only cooked food agreed with me, I couldn't tolerate veggies
or nut flour in the early weeks. I didn't eat raw fruit (a little
cooked apple or pear and some cooked veggies once in a while). I
ate yogurt and farmers cheese and the cheese cake along with too
many hamburgers (all different types of meat for variety lamb, beef,
pork, or turkey) chicken breasts, fish, and soup. Loosing weight
was good for me. I was fat from years of drugs, malabsorption, low
fat high grain diet.
It took at least
eight weeks for the blood and Mucus to stop and feelings of urgency
to completely disappear. It seemed there was changes on a daily
basis so i just kept at it until one day i realized i could eat
the muffins, then a raw salad, raw fruit, whole nuts and was fine.
I used Rowassa suppositories for a month or so. I find them VERY
helpful in stopping the feeling of urgency.
Hang in there
this diet does work for colitis it just might take longer. If your
not anemic the blood and mucus is not a big deal.
If you're anemic
start eating liver. Buy organic no hormone or antibiotic chicken
livers. Empire kosher is a good brand. When took Predinsone all
the time it would take the predisone the same two months to completely
stop the blood and mucus so I figure why not use food to really
heal the gut in that amount of time!
to you on your journey to health, Ruth
wrote: The question has probably been discussed a zillion times,
but is it possible to "break" a flare-up with the SCD? >>
For me the ONLY thing that broke my flare was the diet, as I had
reached the point of no return, where the drugs are no longer effective
and the only thing left is surgery. If the pharmaceuticals could
only bottle the diet, it's power would finally be recognized.
the ONLY thing that has worked for my 11 year old daughter Hannah
is the SCD diet. We have been doing this SCD thing for about a year,
and she leads a normal life with no restrictions on any activities,
with the exception being what she eats, and she is used to all that
now. But a few months ago she had a flare-up. She has never been
on meds, but our MD was prepared to send us to a pediatric GI to
start them if the flare-up didn't stop. He supported my decision
to try the introductory diet as outlined on page 51 of "Breaking
the Vicious Cycle" for four days. If there was no improvement within
that time frame, we were off to see what else would work. We started
the intro diet on a Monday, and saw a turnaround by Tuesday. We
saw the Doc. on that following Friday and he was VERY impressed
with how well she was doing. In hindsight, I think I could have
possibly stopped the flare-up in it's tracks before she became miserable
if I had jumped on the intro diet immediately. But you know, I forgot
about that part of the diet until some blessed soul mentioned it
on this site and I went back to the book, looked it up and implemented
it. Now I keep a container of the chicken soup with pureed carrots
in it in the freezer in case we have to quickly revert to the intro
diet again. Also, the yogurt seems to be a "miracle" food. I don't
know if it will work for you, but it is certainly worth a try. God
Charlotte, Mom of Hannah (Crohn's)
Date: Sun, 19 Mar 2000
From: Nancy Wuestefeld
I just wanted do a little reminding to some of the new list members
that we DON'T advocate stopping all meds cold turkey and substituting
the SCD only. Some of us are on some meds that will bring on a flare
if this would be done.(i.e.. the dreaded Pred.)
I am presently
on 100 mg of 6 MP a day. When I started the SCD in Nov. of 1998,
I was on 150 mg a day and was taking 2 tabs of Asacol 3 times a
The doc weaned
me off the Asacol first. No problem. GREAT, as a matter of fact,
that's 6 less pills a day!
Then he started
weaning the 6 MP. We went VERRRRRRY slowly with that too. Only 25
mg (a half a pill) less for about 3 months, then another 25 mg less
for another 3 months... He explained to me that with the way the
drug is built up in the body, it would take a good six weeks at
least to tell if the lower dose will bring on a flare. I started
having a flare just about exactly 6 weeks after I'd gone down to
the 75 mg level. I went back up to 100 mg. a day and it took about
8 weeks for the diarrhea to slow back down considerably. I might
try another wean in about a year, but for now, I think this is where
I'll stay till my gut heals a little better on the SCD. (I have
Good luck to
all, Nancy W.
wonderful testimonial is worthy of its own page:
Gina Foresta's testimonial
Tue, 16 May 2000 22:40:20
From: christopher steiner
Ditto for me, I was browsing (lurking) on the same newsgroup and
saw the same sort of sprinkling, this Feb., 22 months into my flare.
I had seen reference to the "Gottschall diet" and SCD on some old
homemade IBD websites, and it sparked my curiosity. As soon as i
hit the scdiet.org site I got
very excited and super curious to try it whole hog. For the life
of me, I can't imagine why anyone would not want to at least *try*
it. It takes a lot more perhaps to perservere if you doin't get
initial quick results (I haven';t but I believe in it enough not
to see any value in reverting, esp as I basically know it has helped
somewhat, and even something is better than nothing). Best-- Christopher
(UC, SCD 11 weeks)
Sent: Monday, May 22, 2000
Subject: giving it time
It has occured to me recently that some might benefit from a different
perspective on time and the elimination of symptoms. I have seen
numerous newcomers to the diet jump right into trying to eliminate
every one of their symptoms by eliminating some guilty food.
It seems to
me that much of this smarts of the same old societal tendency to
want instant results. One reason many people can't use this diet
is that they are too impatient to either put in the time in cooking,
or wait for the results. And those results are unlikely to be instantaneous,
or even anything other than SLOW, in coming. Medication may bring
relatively quick results, much of the time. This diet is likely
to take quit a while.
I have been on this diet for 1 year and 5 months. I still have occasional
loose stools, though it's gotten to the point where I don't really
call it D, because it's usually only 1 or 2 events, and then is
back to solid. But still, after almost a year and a half I'm still
in a stage of gradual improvement. I often remind myself that BTVC
itself predicts that it can take 2 years to get to being symptom
I have reached
the point where I think about sypmtoms on a weekly basis, rather
than daily, but still I work to improve. Occassionally I find a
food which it is beneficial to reduce or eliminate - honey and excessive
fruit are in that category. But mostly I find that I can try to
fool around with eliminating things, and not get nearly the results
that come simply from being patient.
This takes time
folks, and it's so worth the investment. If you can speed things
up that's great, but you'll probably end up having to be patient
anyway. I'm sure there will be those who disagree, but I still think
patience has been my best policy.
Thanks for "listening."
wonderful photo is on its own page (aka "the bodybuilding librarian"):
Debra Colchamiro's testimonial and photo
Date: Wed, 16 Aug 2000
Hello everyone, I'm new to the list and have been on the diet for
the past 12 weeks for my CD. Right now, the only of "bad stuff"
in my diet is a bit of sucrose in one scoop of Questran that I have
had to take every day since my resection in '92. (I haven't figured
out a way around it... yet) Other than that, I follow the diet religiously
and I cannot believe what a difference the diet has made in my overall
health. The pain in my lower right quadrant has disappeared, along
with the daily diarrhea and overall fatigue. My doctor is very supportive,
in fact, he said "if the diet works for you, stay on it...no reason
to get off a winning horse". And so, I feel like I am in the Preakness
of Intestinal Health!! Thank you to Elaine for writing the book,
and thanks to all on this list and the site for their information
Wed, 16 Aug 2000
From: "Gina B"
I don't know if anyone remembers, but about four months ago I wrote
to the list requesting suggestions for my severe anemia (my hemoglobin
was down to 8.5). My doctor had me on double doses of iron pills,
and was very concerned. Elaine told me to stop the pills and stick
with the diet. Someone else suggested that I try liquid liver extract.
My doctor had me eating ground beef patties every night! I have
done all of these things... and... It has been a long, slow process,
but as today my blood levels are totally normal!! I am totally thrilled
and just wanted to say, "THANK YOU ELAINE!" I've been on the SCD
for five months and have made so much progress. My joint pain is
gone as are my horrible skin rashes. Unfortunately, I've also gained
15 pounds that I don't need (can't figure out why... my only carbs
are from veggies, 1 slice lois lang bread/day and ½ cup of yogurt)...
still need to work on that! I'm also more active than ever, lifting
weights, running and doing yoga! I love the SCD, Elaine and all
of you! Don't know what I'd do without you!
Thanks again, Gina B.
CD for 9 years
RE: success stories and testimonials
Date: Fri, 17 Mar 2000
From: Judy G
This is my testimonial for the SCD. My undying gratitude to Elaine
for her work. I have a very nice life now, because of that little
was for a mild case of Crohns, what I always thought was a twice
yearly case of the stomach flu, which then became too frequent.
I was diagnosed
the Christmas of 1995 and put on 5-ASA, which made me very ill,
so I quit it. After hospitalization for a blockage several months
later, I was on prednizone from June until January 1997, at which
time I changed over to budesonide.
I had found
the book BTVC in a health food store on Yonge Street in Toronto
right after my diagnosis but was discouraged by all the restrictions
at first. I finally started the diet in the Fall of 1996, becoming
progressively sicker as time passed.
1997 I was too sick to work, and was afraid that the Crohns was
worsening as I now had D. Images of surgeons' scalpels danced in
my head. I remembered how my symptoms were originally and realized
I felt worse than I had when first diagnosed.
All this time
I continued on the diet almost mindlessly. I really don't know why.
At the same time I went to my dentist, who, shocked at how bad I
looked, checked on the drugs in her directory (don't know the name)
and lo and behold, all the horrible things I had been dealing with
were listed as side effects.
my GI thought it was time to see how things looked and I had a barium
x-ray. The results: no sign of Crohns whatsoever, no stricture,
I came off of
the drugs as quickly as I could and the rest is simply a story of
regaining my health slowly. I have never had another episode of
Crohns. The drugs actually gave me the symptoms, even though the
real thing had in fact been cleared up by the diet some time before.
It took a long
time to recover from the fatique, allergies, etc. that resulted
from the toxic drugs and even longer to recover from the emotional
Thanks to the
SCD the fear of Crohns no longer dominates my life. I might add
that now the diet dominates my life (in a nice way). I have been
on SCD since 1996 and don't intend to ever leave it. I don't make
a fuss when I'm at someone's house, but other than that, I stick
to it about 95%.
I found the
SCD site after I was through the worst, but check in regularly because
I love to see other people getting better with the diet.
I continue to
check in with my GI, who asks me how I'm doing. I tell him I'm still
on the SCD and doing great. He has told me he has other patients
on it who do well too. I just wish he had mentioned it to me himself.
My mother lost
her leg to Crohns, from severe dehydration, and her last years were
spent in pain. If I had only known about the diet....
Thu, 7 Dec2000
From: Pam Williams
Subject: Hello SCDers!!!
I discovered Elaine's book in 1996 after hearing her interviewed
on the CBC Vicki Gabreau's show. I tried it for a couple of weeks,
and had such success, I adopted it wholeheartedly for a year. It
changed my life. My friends remarked that the colour that had returned
to my complexion and when the dehydration was no longer a battle,
I could enjoy the hot weather again.
stressful time with family health triggered another attack. I knew
what I had to do to get things under contol, but this time I noticed
an additional pleasant experience. Under normal conditions, I find
cooking a little daunting- so much choice, so little inspiration.
Now that I am back working with a finite number of ingredients,
I find my creativity blossoming. I look forward to experimenting
with the allowable ingredients to find new combinations or "faux"
Even after a
few weeks, I'm feeling so much better and calmer. Thanks Elaine
for giving me the tools to take control of an perennial problem,
and a reason to eat more nutritiously.
I would like
to contact other people on the diet in the City of Toronto who are
interested in forming a monthly Pot Luck Dinner Club. We could share
stories, swap recipes, taste each others food, and eat with abandon.
Can you help me in contacting people, preferrably in the downtown
Toronto area, so that I can start rounding up interested people.
So nice that
all this is on a Web site now. It's encouraging to see so many people
in so many locations have discovered the diet. When I was on it,
I never met another soul who was following the same regime. The
new world of communications is a great way to get in contact with
I'd love to
hear from anyone in Toronto who would like to join me in setting
up the Pot Luck Dinner Club. Please post my name and e-mail address
luck with the web site, and warm regards to Elaine.
Toronto, Ontario, Canada
I am new to the list and would like to introduce myself. My name
is Janice, and I have been diagnosed with UC for 4 years now. The
disease began with mild (proctitis), self-limiting symptoms, which
didn't really disrupt my life much. In Feb. '98, after beginning
a course of antibiotics, the disease became much worse, and I ended
up with full-blown pan colitis. I was hospitalized twice in 3 months,
received blood transfusions, and was extremely miserable and fearful
of where this experience would end.
There is a book
called "Breaking The Vicious Cycle", that I had repeatedly seen
in the book stores while I was browsing. The author claims that
if her diet is followed strictly for at least a couple of years,
people suffering from Crohn's, Colitis, Celiac's, and other intestinal
disorders can become symptom-free...and stay that way indefinitely.
I was skeptical,
but ended up buying the book a year or so before becoming extremely
ill. I tried to follow the diet at that time, but failed. I think
it was because of a combination of things. I could not withstand
the skepticism of those around me, and all the eye-rolling and negative
remarks that made me feel foolish for thinking that something as
simple as a diet could help me. Also, my doctor certainly thought
the whole thing was a hoax, and he recommended against it. The other
reason I think that I could not continue to follow the diet was
because I WASN'T SICK ENOUGH!!! I felt pretty good, didn't need
any meds, and had no idea how horrible and devastating this disease
could be...and would be for me in the near future.
So, about a
year later I found myself desperately ill, unable to look after
myself or my family, and I finally found the motivation to begin
the diet seriously and stick to it strictly. I did not know whether
or not it would work, but figured that if I ended up having to face
surgery, I didn't want to be wondering whether or not I could have
avoided it, and saved my colon if only I had given the diet a serious
I felt that
trying the diet was very low risk. A couple of very well-respected
GIs had reviewed it and although they did not endorse it (they said
that they felt it needed to be studied under controlled conditions
before it could be recommended), they had admitted that it was a
balanced, palatable diet. They published a review of "Breaking The
Vicious Cycle", in the Canadian Journal of Gastroenterology.
So, I followed
the diet. I still suffered horribly for the first 4 months that
I was on the diet. After that, my bowel began to heal, and I found
myself feeling more and more incredibly well, energetic, better
than I'd felt in many years (even pre-UC.) Six months after beginning
the diet, my GI told me that my colon looked NORMAL. It has looked
that way for the past year.
to pass on my experience to others who might benefit from it. The
incredible part about this diet is that it is only a diet. There
is no magic supplement, or secret ingredient that someone is making
tons of money on. It's just a matter of feeding yourself good food,
and putting an end to consuming harmful stuff that most of us eat
on a daily basis.
There are many
others who have regained their health after following this diet
as well. Nine months after beginning the diet, I found the SCD list
on the internet, where there are about 250 others sharing information,
and support to newcomers, and many success stories.
I have had Crohn's
Disease for 30 years. Recently had 3 Remacade infusions with no
improvement (if anything, I felt worse). My doctor scheduled me
to see a surgeon for an ileostomy the week before Christmas. After
thinking about it, I cancelled the appointment because I knew I
didn't want to to anything before Christmas. Also needed to mentally
prepare myself. Don't know why I never looked before but one night
while looking under Crohn's Disease on the Internet, I found a reference
to Elaine Gottschall's book, Breaking the Vicious Cycle. It has
only been about 3 weeks but I can't believe the difference it has
made. I can eat WITHOUT PAIN! Just on the off chance that the Remacade
was finally starting to work, on Christmas Day I had a very small
helping of potatoes and gravy, a little dressing and a piece of
pie - became bloaty and gassy. Things certainly aren't perfect after
this short time but so much improved that it is scary.
Although I have
had a severe case of UC, after following this diet strictly for
6 months my GI told me that my colon looked normal. I have been
on the diet for about 18 months now, and since that examination
six months into the diet, my colon has continued to look normal.
And I feel very, very well. After being so ill, unable to look after
my family or myself, the experience of healing on this diet has
been so LIBERATING - I can hardly describe it. There are about 250
of us on the SCD list, and success stories are frequently shared.
I'm certainly not the only one. The diet requires will-power and
time, but you could not pay me enough to go off of it. I hope that
your daughter will look into it.
(editor's note: a different Janice than the
4 years this month!
Date: Sat, 25 Mar 2000
From: "Fran Peterson"firstname.lastname@example.org
March marks the 4th year I've been on the diet. The first year I
was not so fanatical in strict adherence because I was unaware of
so many hidden ingredients in some products.
Also I ate in
a lot of restaurants. Before the diet I got so sick I could barely
walk, couldn't drive, was in constant pain. While visiting a friend
of Lucy's I was fortunate to be able to buy Elaine's book and try
it out. It was remarkable at first even with consuming some illegal
foods unknowingly. After getting on this list and finding out more
I was able to stick with it 100% for the last 3 years. The improvement
is incredible! I can't thank Elaine enough. Also, I just received
my copy of Lucy's new cookbook. It's really great. Am looking forward
to trying the recipes because I had been in a rut, just eating the
same old thing. Going through the new cookbook today, my husband
and I are drooling!
questions: in the beginning I could eat the yogurt but for the last
year I have avoided it because it gave me problems. Anyone else
have this problem? Any insights as to what is going on? Then there
was the time I got convinced that maybe I had yeast so I began eating
raw garlic squeezed on foods. Again, BIG problems with pain and
bloating. Fresh lemon juice can do this to me also. I don't have
bleeding and never did so didn't think these things would cause
a problem. Any insights?
you so much Elaine! You have given me back my life.
Love, Fran Peterson
Re: 4 years this month!
Date: Sat, 25 Mar 2000
From: Elaine Gottschall email@example.com
To: Fran Peterson
Before getting on this list, I would often wonder "what's going
on out there!" I would hear from people about twice a week but I
knew there must be a lot I didn't know. Today has been remarkable.
I'm getting reports - good ones from every direction.
I don't know
why lemon juice would bother you but thank goodness you have identified
this idiosyncracy. As I have said before, some very sick people
with Crohn's can consume more than a quart of homemade yoghurt per
day and thrive; others are bothered. Have you tried the culture
Lucy sells with the
maker? It makes such wonderful yoghurt and you always have it on
hand rather than the containers you have to buy and try to keep
fresh. Again, thank you for your letter.
Date: Wed, 12 Jul 2000
to post this for a while. Now I am finally moved in to my new house
(which I bought - the first) and am catching up a little on the
list. I'm WAY behind, and I still have lots of boxes to unpack,
so I probably won't totally catch up soon. But, I'm getting there.
As for the success,
I have finally gotten back to drinking the 3 quarts of water a day
that I think my body needs. My doc (who I never see anymore) once
told me that having had a resection my body absorbs water less well.
He thought that meant I should drink less water (this was years
ago, and even then I knew I felt better when I drank more) because
it wouldn't be absorbed. However, for the last few months I've been
fighting off a mild backslide into symptoms I hadn't had for a while
before that. In the last week or so, since getting back to drinking
my 3 quarts ago, these symptoms are GONE. I'm having the best, most
consistent BM's since before I was diagnosed, 11 1/2 years ago.
WOW!! Now, you might claim that being a teacher on summer vacation
could have more to do with it than the water intake, but my stress
level has not exactly been lower these last few weeks. Quite the
contrary, I've been moving, and this Monday I had the worst day
of stress in years. [story about previous
landlord removed] I credit getting back to drinking all that
water. I just feel better in general, but having consistently brown
and solid BM's is a major step.
Almost 19 months
on SCD, and I keep gettin' better. I'm getting to the point where
I can't imagine being much healthier. I think I'm healthier than
most of my friends and family, who think of themselves as being
in perfect health.
THANK YOU EVERYONE.
YOU WERE MY LIFELINE WHEN I FIRST STARTED, AND NOW MY LIFE IS BETTER
THAN IT'S EVER BEEN. SCD NOT ONLY CHANGED MY HEALTH, BUT IT CHANGED
MY OUTLOOK AND PRIORITIES. I'M A BETTER PERSON FOR HAVING BEEN THROUGH
THIS THAN I'D HAVE BEEN IF I'D NEVER HAD CROHN'S. THAT MAY SEEM
STRANGE, BUT I REALLY THINK IT HAS BEEN A VALUABLE GROWTH EXPERIENCE
FOR WHICH THERE COULD BE FEW SUBSTITUTES.
Back to unpacking
boxes, but I needed to say this. Nancy
Mon, 4 Sept. 2000
From: Kirsi Koskinen
time in 5 years I am full time student in University of Oulu plus
having my free-time as I used to have before getting ill. No symptoms,
my blood tests are completely normal and having lots of fun! Bicycling,
walking, swimming, travelling, working, e-mailing, studying and
enjoying my wonderful new life.."
Kirsi's full testimonial
Greetings from Finland!
Date: Sun, 1 Oct 2000
From: Ulla Raisanen
Hi you all!
- I'm Ulla (25 yrs old) from Finland and I just wanted to write
a few lines about my situation and to thank you all for being there!
I've been diagnosed with colitis ulcerosa in -98 and been on and
off medication (mainly Prednisone) since then but with very little
help. This spring I was facing surgery (removal of the entire colon)
but then, in the nick of time, I was more than lucky to stumble
across some information on SCD in the Internet. Soon I got in touch
with the few people in Finland following the diet and since then
my life has changed dramatically! I've been on SCD for little over
3 months now and my condition has improved tremendously. I'm not
entirely symptom free yet (not that I'd expect that so soon) and
I've had my ups and downs but on the whole I feel like a new person:
no cramps, only occassional bleeding and also diarrhea has recently
eased up a bit. I'm able to work, exercise, meet my friends and
ENJOY my life!
I've got indispensable
help from Kirsi (I'm sure you remember her) - she has done so much
for us SCDers in Finland! Without her help, knowledge and support
I wouldn't stand where I stand today. I've been also following this
list for quite some time and learning a lot from here. Naturally,
my deepest gratitude goes to Elaine for giving me my life back and
restoring my faith in the future. I can't even begin to describe
in words how GRATEFUL I am to you Elaine!!
Then I just
have a few questions to ask. Firstly, I'm eating wide selection
of SCD legal foods (including raw veggies + fruit, nuts, almond
flour) despite my occasional symptoms because I want to ensure a
balanced and nutritious daily diet (I'm not taking any supplements
cause we have no legal ones in Finland). Could this, in your opinion,
risk the effectiveness of SCD in the long run? Ie. will an extensive
version of SCD adopted this early either slow down or even entirely
prevent SCD from having its full effect on me eventually (be it
in 6 mos or 2 yrs)?
is the next edition (8th) of BTVC coming out? I can't to wait to
get my hands on the new copy!
I wish you all great health + thank you! I hope my condition will
continue improving (sometimes I'm still afraid that this won't work
for me in the long run - I guess my fears of this illness occasionally
overshadow my belief in the diet!) Sorry for being this extensive,
all the best,
Ulla CU since 98
SCD 3 mos
To Ulla from
Elaine I am filled with joy after reading your letter. Our darling
Kirsi is really buckling down. Bless her and you. I can understand
your fears because UC and Crohns are really frightening diseases
and once we see a light, we are afraid to put too much hope. I wish
I had a remedy for that...If you cannot get vitamins in Finland,
so be it. Ask Kirsi what she did. She is a walking role model. I
remember her saying she had been sick for many, many years - way
back - so she is truly an inspiration. Give her two kisses from
all of us if you see her. The new edition is in press. But the only
differences are the web site additions and email resources. I do
not think one will be able to get it from any source for about two
months. But if you visit www.scdiet.org, you will be missing nothing.
Mike and MIk in Copenhagen have added audios and all kinds of things
so feel secure that that site will keep you up to date.
I would love
for them to put some of the videos on but I am so naive about computers
that I can't even imagine being that fortunate. I have told the
group before: the world must see and hear the segment where the
girl is well as a result from the SCD and is asked why she waited
to go on it and then says "WELL, I THOUGHT IF IT WERE ANY GOOD
MY DOCTOR WOULD HAVE TOLD ME ABOUT IT!" (It so happens that
her Toronto doctor was head of Crohns and Colitis.) It is such a
punchline I would love all the world to see and hear it.Keep
getting well and much love Elaine
Date: Sat, 28 Oct 2000
From: "Katie" Ktfish@NYcap.rr.com
Now, I want to thankyou, thankyou, thankyou, for giving me my life
back. I have only been on the diet for 5 weeks and I feel like a
new person. Before I went on the diet I was on the verge of a colostomy.
That is what my colorectal surgeon was recommending. I have Crohn's
and my colon in the sigmoid and rectal areas is strictured to the
point where I can't even be scoped, haven't been able to for 10
years. I have had a peri-anal fistula since December of 99 that
wouldn't go away and kept abscessing. I have a 5 year old, 2 year
old and 12 month old baby. Since December I have barely been able
to take care of them, in a lot of pain from fistula, and going to
the bathroom 30 times a day. I couldn't wait for the day to be over
so I could just rest. I was not enjoying life. Now five weeks later
my fistula is almost gone, barely draining. I am going to the bathroom
once maybe twice a day, with no pain or difficulty. My bowel movements
aren't normal because of the stricture but it doesn't bother me.
I am enjoying playing with my children instead of wanting to be
left alone. I actually went shopping today, had lunch and did not
wonder where the bathrooms were for the first time since I was 12
(I am 34 now). I know this is long but I want you to know what a
miracle this diet has been for me and how far I have come in 5 short
weeks. I am so grateful to you Elaine for making this diet known
and researching it etc., and to all the people on the list for their
support and info. I hope this doesn't make anyone uncomfortable,
but I would like to share this with you Elaine. I knew about your
diet from the internet for about a month before I tried it. Being
a carbohydrate fiend I was really hoping that I could find something
else that would work. I kept praying to God for help and I kept
getting the thought in my head that I needed to try the diet, so
I did. You are the answer to my prayers Elaine. God bless you. Katie
Date: Thu, 26 Oct 2000
Just back from my doctor (Dr. Bolte in Manhattan). He is the one
who recommended I read BTVC. I have been on a "modified" SCD (no
yogurt, no almond flour) for 3.5 months. My intestinal permeability
test came back NORMAL today. No more leaky gut! I still have food
allergies, but he feels most will resolve over time. This seems
to be what everyone indicates on this listserv. I am so delighted!
I feel I am turning a corner and finally getting well! I'm still
going to get some intestinal parasite testing done, and I am going
to try the Ness Enzymes to see if they will further help me (Dr.
Bolte is ordering them for me).
In this hopeful
time, I would like to thank everyone for their encouragement and
"tips" over the past several months. You are such a generous and
warm group of people. Your responses have meant so much to me.
want to thank you, Elaine, for writing that book! And thank you
so much for all the responses you've given me on this listserv.
I hope over
time I will be able to eat that almond flour, which tastes so good.
And perhaps even the yogurt. Lucy, you may be hearing from me yet!
the best of luck tomorrow!
Disease (diagnosed 3.5 months ago)
More Celiac information
Sun, 26 Nov 2000
Subject: It works!!!
In the interest of helping, I will abandon any modesty and let loose!
I've had Crohn's disease for 25 years, since I was 12. Four surgeries:
1) exploratory (1975), 2) resection (1987), 3) resection (1993),
4) perforation 1 month after surgery #3 resulting in emergency surgery.
One kidney stone (Crohn's isn't bad enough on its own - need some
side ailments as well :), and a fistula (those are reeeal fun) since
'93. 2 lost careers, yada, yada, yada...
watery Diarrhea since 1993. Still treating with the same thing they
used 25 years ago - prednisone.
finishes up the second week of the SCD diet. After 8 days, things
started to "firm" up. In the last few days, I feel almost normal
- it's amazing. Not getting up in the middle of the night, etc.
The part I'm really looking forward to is getting my "head" back
- as you all know, having life revolve around the bathroom just
plain "messes you up". From what I've read about SCD, a return to
mental "normalcy" is a happy side effect, as well.
The first week,
my main concern was making the transition without too much hardship
(sorry to say, but I'm a bread/pasta FREAK). So the main goal was
to follow the diet, even though some things were probably a bit
rough so early on. I ate a lot of hamburger (with tomatoes/onions)
and a few salads and coffee (got to have some vices!). The second
week I realized the diet is excellent and there is nothing lacking,
so my concern became to abstain from some of the harsher foods and
start healin'. So we cut out the burgers, tomatoes, onions, and
salads, and replaced them with chicken (an SCD version of shake
'n bake - it's awesome), soft-boiled eggs, and fish. Chicken/fish
are much easier for me to digest than red meat. The other thing
I find interesting is that I've been eating mild cheddar like a
machine and have had NO problems, and I'm as lactose intolerant
as they come. Also, for what it's worth, I pretty much do a fruit/juice
fast until noon everyday (from the Fit for Life book). After 12:00,
I start with the solid foods. This week's goal is to start tapering
off the coffee - I only drink 2 cups a day, but whoa to anyone who
tries to take them away!
Let me thank
all of you for your input - I've learned more in 2 weeks than I
have in 25 years. And having Elaine here as an active participant
is incredible. It's reassuring knowing that there are others going
through the same thing. A small example -- I thought I was different
because bananas "kill" me - then yesterday I read that they do the
same thing to Cori. These similar experiences make us realize we're
not alone in this and that we're not all that different.
Anyway, I hope
this encourages others - I'm so excited, words can't describe it.
Re: It works!!!
The excitement in your letter takes me back to the moment I first
realized that I'd stumbled on a miracle when I found the diet, and
how amazing it felt not to have to devote 90% of my energies in
locating the next bathroom. Welcome back to life Jeff, and enjoy.